Saturday, June 22, 2013

Take it One Day at a Time

Today's gift is take it one day at a time.

I don't know if you read my post titled, The Real Teacher, but if you haven't please do.  http://www.365daysgift.com/2013/06/the-real-teacher.html

My husband, wrote for a Rett blog and one of his thoughts he shared was how hard it is for him to watch a father give away his daughter at a wedding and how hard it is for him to watch the father/daughter dance.  I will not lie.  It is hard for me too.

My friend is getting married today and I am in the wedding.  There have been many thoughts all weekend leading up to today.  And you may see my thoughts in some way are similar to yesterdays...as weddings do make me think into the future.  I apologize for sounding redundant, but I would not be true to myself if they didn't come out again.  Thoughts of course, about will this type of day ever be a reality for my daughter.  The answer is simple.

I do not know.

I would like to think, yes, it will happen.  But I simply do not know.

It is amazing to think that the researchers and scientists found that mutations in a gene called MECP2 were identified as to what causes Rett Syndrome in 1999.  Then eight years later in 2007, they reversed Rett Syndrome in mice.   So hopefully this means that in 2015, eight years after the reversal they will have bigger and better news for the families who have a loved one with Rett Syndrome.  My daughter will be 14 in 2015.

My dream would be for a cure or treatment to be available by her 16th birthday.  How incredible would that be?!?!  It isn't too unrealistic to think this.  Research has come so far and many scientists are so close to unlocking our girls from their own bodies.

I dream of the day when she is free of Rett.  Where she can do all the things she has always wanted to do....but couldn't .  Where she can travel the world...without me.  Where she can walk hand in hand... with someone she loves.  Where she can dance... all night long.  Where she can live the life she deserves... with someone who will love her with all their heart.

Until this day comes, my daughter has taught me to just take it one day at a time.  There is no sense in worrying about something that is going or not going to happen.  There is no sense in thinking of all the "what ifs".  There is no sense in letting everything in the present slip away because I am thinking about the future.  Enjoy today for today.  Live in the moment.  What happens in the future is going to happen regardless of my thoughts or worrying.

She is so amazing today the way she is and I do not want to take that for granted!  Together we will take it one day at a time and together we will see what the future holds for us.

Here are two quotes for today...

Note to self: don't worry, if it's supposed to happen, it will- Author Unknown

Worrying is like sitting in a rocking chair.  It gives you something to do, but doesn't get you anywhere - English Proverb






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